Our stories intertwine . . . overlap . . . run into each other, as we chase the dreams in our hearts; the longings of our souls.
As we share our stories, we find ourselves singing along to the same song; melodies of life and love; pain and suffering.
Words of truth reveal our shine and sparkle, and reflect that of others. I share my bits and pieces here, in hopes that others will recognize the shine within themselves, as the light reflects.
Friday, February 25, 2011
Nothing Changes (HD)
52 years this body has existed
52 years ago its genetic makeup was set
By God alone
To be revealed
To the owner of this body
Was there a special little party
On chromosome 4 (address 4p16.3)?
Did my trinucleotide repeats get carried away
Going beyond the usual 35 repeats or less?
This is the information I will receive
How many CAG repeats are there at that particular address
On chromosome 4?
If the number is high
The unanswerable question is
When will neurons start dying Are they already? When will my body start showing the signs of it?
The bigger question is
What does one do to prepare for such information?
My body, my self
Will not change
With the knowing
The day after knowing will not vary greatly from the day before.
So the real question is
How will I choose to respond to whatever the news may be? (an easier question if I am "normal")
I plan to share champagne with my family
No matter what the results are
This is all part of life
Until the freedom of death
The main thing to do is remember
Remember what I know
Remember there are choices
Remember to stay in the moment
Remember that Love is real
Remember that Love fills, surrounds and carries me
Remember that my precious body and soul
Will be carried and led lovingly
Whether it malfunctions, or not
And we will all have malfunctions of the body
We all need Love to carry and guide
Til we're home
p.s. to those who have not read earlier posts, I am awaiting results of a genetic test to see if I have Huntington's Disease.